To the moms of children with CF who feel isolated in their journey — you are not alone. This is my letter to you, from someone who understands.
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Bianca Maldonado-Dequin
Travel prepared with the phone numbers and addresses of local pharmacies, hospitals, and urgent care centers.
6 min read
In addition to the typical travel headaches, people with cystic fibrosis must also consider other things related to their health. This section will discuss ways to be as prepared as possible for your trip so that you can spend less time on travel hassles and more time enjoying yourself.
At this age, your child with cystic fibrosis is ready to transition from breast milk or formula to whole milk or a high-calorie supplement. Encourage independent eating. Create a consistent schedule and mealtime expectations.
6 min read
With help and support from my parents, I felt empowered to make my first big decision with my cystic fibrosis care: When to remove my G-tube.
Jaclyn Strube
Major Strube