If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
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Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.
Having trouble finding things to keep your toddler occupied during treatments for cystic fibrosis? Here are five tips that do the trick for my 3-year-old son, Major.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
Before you can walk a mile in a person with CF's shoes, you have to put on a nebulizer.
Connie Richless, an adult CF nurse coordinator, has seen a lot of changes in her past 22 years of working with CF patients.
In the third plenary of NACFC, three guidelines authors announced the publication of guidelines for screening and treating depression and anxiety, and explained how the guidelines were developed. Read on for my thoughts.