Dr. Dorothy Andersen first wrote about cystic fibrosis in 1938, and our understanding of the disease has significantly evolved since. There are still many misconceptions about what CF looks like today, from the person who lives with the disease to how it manifests.
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At the Cystic Fibrosis Foundation, we commit to equity, racial justice, diversity, and inclusion as core principles guiding our efforts to provide all people with CF the opportunity to live long, fulfilling lives.
mRNA therapy is one way to deliver the correct genetic instructions to cells, which would allow them to make functional CFTR protein regardless of an individual’s CF mutations.
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to provide a correct copy of the gene to treat CF.
Cystic fibrosis is caused by mutations in both copies of the cystic fibrosis transmembrane conductance regulator (CFTR) gene. Scientists are examining whether it is possible to correct the mutations through a process called gene editing.
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You may be waiting for a transplant for a long time. While you're waiting, there are some things you will have to do in addition to your normal routine, to ensure you remain healthy and eligible for transplant.
Taking care of your new lungs is a big responsibility. Your transplant team will help you learn how to reduce the risk of infection and rejection and keep your lungs healthy.
Individuals with cystic fibrosis require more energy to breathe normally, fight lung infections and compensate for poor digestion. For these reasons, they need more calories than people without CF.
Your body needs vitamins to help it grow, function, and fight off infection. Try to incorporate foods rich in these vitamins and take a vitamin supplement, if necessary.