ResearchCon is for everyone with a personal or professional connection to cystic fibrosis to learn and discuss CF-related science and care alongside others living with and studying the disease.
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ResearchCon is for everyone with a personal or professional connection to cystic fibrosis to learn and discuss CF-related science and care alongside others living with and studying the disease.
This annual meeting brings together scientists, clinicians, and caregivers from around the world to discuss and share ideas on the latest advances in CF research, care, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.
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Nutritional support is a vital component of care for patients with cystic fibrosis. These recommendations cover caloric intake, dosing for pancreatic enzyme replacement therapy, and monitoring growth in childhood and weight status in patients of all ages.
Because of the COVID-19 outbreak, millions of Americans, including those living with cystic fibrosis and their families, are facing tough decisions around employment. The issue of paid leave and its eligibility is emerging as a top concern for people with CF and working members of their family.
These guidelines were developed by consensus based on expert opinion and a medical literature review to guide the monitoring and care of infants who have an abnormal cystic fibrosis newborn screening result, but do not meet the full criteria for a CF diagnosis.