There are no easy remedies for the perpetual dance that the parents of a chronically ill child do to deal with the painful and enduring isolation. And personally, I found a sense of hopeless defeat.
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Some days, the biggest struggle I have is accepting that I have CF.
Although my lung transplant was the end of one story, it was also the beginning of another, more difficult story.
Today I am proud to introduce More Than CF. Your struggles, your achievements, your routines and the small surprises of your every day breathe life into the Foundation's work. You can get involved by sharing your experiences with us on Facebook, Twitter and Instagram and by searching #morethanCF.
Many individuals and organizations are out there serving people with CF and their families in their daily lives. Through the new Impact Grant program, the Foundation will fund individuals or organizations who have a program or project that benefits the community.
Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.
Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.
In this “Living Today” video, we learn how Carrie Giddens, a 30-year-old with CF, and her husband, Craig, decided to have their first child through IVF and surrogacy.
Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?