Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.
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Aug. 2, 2018
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2 min read
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Sept. 26, 2008
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1 min read
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June 29, 2009
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1 min read
On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.
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Dec. 17, 2018
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3 min read
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July 16, 2009
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2 min read
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Jan. 20, 2010
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1 min read
The Cystic Fibrosis Foundation recently signed on to a letter with more than 70 organizations in opposition to the Right to Try Act, which passed in the House of Representatives earlier this month.
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April 5, 2018
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3 min read
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March 19, 2010
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1 min read
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Dec. 28, 2007
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2 min read
The U.S. Food and Drug Administration approved the use of lumacaftor/ivacaftor (Orkambi®) today for children with cystic fibrosis ages 2 to 5 who have two copies of the F508del mutation.
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Aug. 7, 2018
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3 min read