When I decided to study abroad in 1974, I also decided that I would not allow CF to stop me from living my life to the fullest.
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Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
With the holidays fast approaching, it's time to prepare for the change of schedule in your cystic fibrosis routine.
Sr. Vice President for Policy and Community Affairs Mary Dwight reflects on the passage of the Ensuring Access to Clinical Trials Act (EACT) and what it means for the community.
During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.
March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.
During our family round trip from Oklahoma to Florida, I learned a thing or two about traveling with a CF tot.
Thinking of how you will take care of your health while traveling with CF can be very intimidating. For 28-year-old Stacy Motenko, preparation is the key.