The Cystic Fibrosis Registry Global Harmonization Group published in the Journal of Cystic Fibrosis updated data on the impact of COVID-19 on people with CF. The manuscript reports on 181 people with cystic fibrosis from 19 countries diagnosed with COVID-19.
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Press Release
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Nov. 9, 2020
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4 min read
The Cystic Fibrosis Registry Global Harmonization Group, including the Cystic Fibrosis Foundation, published findings from the first global study on the impact of COVID-19 on children with cystic fibrosis in the Journal of Cystic Fibrosis.
Press Release
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Dec. 9, 2020
|
4 min read
The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of community while we take precautions to protect ourselves and loved ones with CF.
If you have cystic fibrosis, you have sticky mucus in your digestive system. You need to take enzymes to digest food and medications to stay regular. Doing this will help you grow, maintain your weight, and fight lung infections.
Nutritional needs for people with cystic fibrosis are determined by their degree of malabsorption, activity level, and the severity of lung disease. Individuals with CF typically need 1 ½ to 2 times as many calories as people without CF.
People with cystic fibrosis are living longer than ever. As people age, bones get weaker and break more easily. Let's look at different ways that this can be prevented with nutrition and exercise.
Tube feeding can be a great way to get the calories and nutrients that you or your child with cystic fibrosis need to gain and maintain a healthy weight. Explore this as an option with your CF care team.
Good nutrition for children with cystic fibrosis means high-calorie foods, enzymes, vitamins and minerals. It also can mean accepting tube feeding as a way to help your child thrive.