After my lung transplant, I discovered I couldn't keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.
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Our dream for our daughter, Eden, is the same one that parents have for their kids who don't have cystic fibrosis. We want her to be happy and realize her true potential.
I've learned that what I tell myself about how cystic fibrosis affects me, affects my belief in what I can achieve, and how I feel about myself as a person.
If you have CF, maybe you couldn't get out of bed today, or maybe you are traveling the world. No matter your health status, you have learned to be strong in the face of the fear and pain that comes with CF. So, take the strength you have and pass it on to others. Because true healing comes when you show people love.
People in the CF community do so much every day. Beyond doing treatments, going to clinic appointments, and doing countless other things to stay healthy, some of you are writing books and music to help others with CF and give thanks for your loved ones. Read about what three people with CF have created this year.
At the age of 30, I faced the difficult reality of a conclusive cystic fibrosis diagnosis and the CF-related infertility that came with it. Although I experienced a lot of guilt as my wife and I built our family and I hated seeing her suffer because of my disease, our journey with in-vitro fertilization (IVF) proves that you can be a father despite living with CF.
When I was younger, I thought my cystic fibrosis affected me and only me. I have begun to realize the emotional toll that CF also takes on my family and loved ones.
Although social cues dictate that we ask others how they are feeling when they're sick, this question is a lot more complicated when you have a chronic disease like cystic fibrosis.
I got into advocacy to work for the common good of all people with cystic fibrosis. Little did I know that this work would help me in a very personal way.
The night of our first cystic fibrosis-related fundraising gala was memorable in more ways than one. Thanks to new friendships, I got the chance to honor my daughter with CF in a special way.