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Everyone with cystic fibrosis faces the fear that their next infection could be the one that doesn't respond to treatments. Chronic infections eventually led to my sister's death. After seeing what she went through, it became clear to me that we have an immediate need for better anti-infectives.
One year. My doctor gave me one year to try to get pregnant before treating me for my infections. Trying to get pregnant while still treating my CF the right way is one of the hardest battles we have had to fight.
In January, I underwent successful phage therapy -- an experimental treatment in which viruses are used to kill difficult-to-treat bacteria. To get a better sense of the future of this potential treatment option for other people with CF, I chatted with the head of the Infection Research Initiative at the Cystic Fibrosis Foundation.
Does Trikafta® increase the chance of pregnancy for women with cystic fibrosis? Can men regain their fertility on modulators? I recently had a candid chat with the chair of the Women's Health Research Working Group to find out the answers to these and other questions about reproductive health.
At the age of 30, I faced the difficult reality of a conclusive cystic fibrosis diagnosis and the CF-related infertility that came with it. Although I experienced a lot of guilt as my wife and I built our family and I hated seeing her suffer because of my disease, our journey with in-vitro fertilization (IVF) proves that you can be a father despite living with CF.
After years of preparing my body and ensuring stability, I am excited to announce that we are pregnant! I am thankful because I believe my hard work has played a role in our success and our immense joy right now.
Watch our vlog to hear us discuss the physical and emotional components of going through in-vitro fertilization (IVF), with a special focus on the female perspective.