As the first contributor to the CF Community Blog, I was ecstatic when the Cystic Fibrosis Foundation reached out to me about authoring the 500th post. As I look back on all the stories the CF community has contributed over the past three years, I can't help but feel grateful for the opportunity for connection.
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Three of our Impact Grant awardees tell us how the program has allowed them to make a difference.
Legislation Would Remove Financial Penalties for Participating in Research Studies
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.
New Bill Would Remove Financial Penalties for Participating in Research Studies
The Cystic Fibrosis Foundation has awarded the 2016 Impact Grants to individuals or organizations making a positive impact on the cystic fibrosis community.
Connecticut and Texas Last to Join Others in Testing for Life-threatening Disease
Since our founding in 1955, we have worked alongside the cystic fibrosis community to effectively transform a genetic disease in a single generation — making CF one of the most amazing stories in medicine today. Read about the milestones we've achieved in pursuit of a cure for cystic fibrosis.
The Cystic Fibrosis Foundation announced the appointment of Marc Ginsky as executive vice president and chief operating officer. Mr. Ginsky will oversee the Foundation's day-to-day operations with a focus on field management, information technology and the Foundation's infrastructure.