With the opportunity to broaden our scope, we are opening up everything we do to people living with CF -- and we want to hear from you.
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For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
Growing up, I never had any doubts that I would one day go off to college and pursue a career, despite having cystic fibrosis. But when the time came to prepare to attend Marquette University and live on my own in Milwaukee, I knew I would need a plan in order to make my transition to college life as smooth as possible.
As a teacher with cystic fibrosis, I find it no surprise that heading back to school can be a shock to my system. But over the years, I've learned that if I can remember three main things, I can stay healthy through the transition back to school.
The Cystic Fibrosis Foundation has an attendance policy for all Foundation events, meetings, and offices to preserve the health and well-being of all people, including people with cystic fibrosis, by reducing the risk of getting and spreading dangerous germs.
When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.
As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.
Learn how Rachel Kinney manages her CF while away at college.
Creative use of technology can help build a more connected community. Read on to learn about the Cystic Fibrosis Foundation's innovative efforts to include more people with cystic fibrosis.