Weeks after my son was diagnosed with cystic fibrosis, I knocked on my local chapter's door to ask what I could do to make a difference.
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Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here's why I decided to say yes.
Many people have asked me why I would want to climb the highest mountain in Africa with no climbing experience. The answer is simple: an undeniable love for my daughter, Jennifer, and a determination to raise money for all those living with cystic fibrosis.
Two 2017 Volunteer Leadership Conference attendees, one a veteran attendee and another a newcomer, reflect on their experiences in Dallas, Texas.
The initial sadness we felt when learning that our son had cystic fibrosis quickly gave way to our determination -- as a family -- to react in a productive way.
Learn about the rights of Cystic Fibrosis Foundation donors.
We are excited that this spring, in Washington, DC, from March 13-16, 2024, there will be an enriched conference experience that combines March on the Hill (MOH) and our Volunteer Leadership Conference (VLC) into one extraordinary event for our leading volunteers with the theme of Hope in Action.
National Teams raise awareness about cystic fibrosis, and raise funds to support the Foundation's mission to find a cure for CF.
Back in 2015, my genetic sequencing revealed one nonsense mutation. But recently, I learned I have another nonsense mutation that may not have been identified when my genes were first sequenced. As more mutation-dependent therapies are developed, it’s crucial that people with CF have accurate information so they can make informed decisions.
There are two main types of clinical studies in CF research. Both are important to move research forward and provide the best outcomes for people with CF.