Cystic fibrosis affects people of every racial and ethnic group. Of the nearly 40,000 people living with CF in the U.S., approximately 15% are identified as racially or ethnically diverse. Research shows that people of color with CF, particularly people who are Black and Hispanic, experience unique challenges and often have negative experiences that can lead to poorer outcomes. Some of these inequities are referenced in the following data.
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4 min read
En la Fundación de la Fibrosis Quística, nos comprometemos con la igualdad, la justicia racial, la diversidad y la inclusión como principios básicos que guían nuestros esfuerzos para brindar a toda persona con fibrosis quística (FQ) la oportunidad de llevar una vida larga y plena.
You can best manage your health when you know what to expect, what resources you can use, and a community of people with whom you can share your experiences.
8 min read
Your doctor may classify your baby as having CRMS/CFSPID if he or she has a positive newborn screen and subsequent sweat chloride test results that fall into an uncertain or borderline range described as "intermediate."
4 min read