Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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When I decided to study abroad in 1974, I also decided that I would not allow CF to stop me from living my life to the fullest.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
My oldest son, Nathan, was 18 years old when he was finally diagnosed with cystic fibrosis. While we both had been waiting a long time to get an answer to what had been plaguing him, I'd been hoping and praying that he'd escape the CF sentence. The diagnosis, however, did not come as a surprise because exactly 35 days earlier, my younger son, Caleb, at 14 years, had already been diagnosed with CF.
Cystic fibrosis can't take living away, especially when one loves life!
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
I knew that I needed to make a change when I began checking on home from the office and checking on work at odd hours from home.
Sometimes, being the “squeaky wheel” is the only way to make a positive change.
While I am not grateful for having cystic fibrosis and cystic fibrosis-related diabetes, I have no doubt that if it weren't for me having CF, I would not have become the person that I am today.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.