The initial sadness we felt when learning that our son had cystic fibrosis quickly gave way to our determination -- as a family -- to react in a productive way.
Site Search
Showing 61 - 68 of 68 results
Michael J. Woods, Esq.
|
4 min read
Millions of NASCAR fans will tune in to this Saturday's race at Chicago Speedway, where ARRIS-sponsored driver Daniel Suarez will feature the Cystic Fibrosis Foundation logo on his #18 car.
News
|
June 19, 2015
|
1 min read
Reflecting the continued momentum we're making in the fight against cystic fibrosis, the latest Patient Registry data show steady gains in survival for people with CF. With this good news comes a lot of excitement, along with some questions.
Bruce C. Marshall, M.D.
|
4 min read
News
|
Aug. 31, 2012
|
2 min read
Growing up, the term “life expectancy” was always with me, affecting my choices and expectations. Over time, I learned to tune it out and live my life my way.
Linda Bowman
|
5 min read
News
|
Dec. 21, 2012
|
3 min read
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.
Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.
News
|
April 2, 2024
|
5 min read