Some days, the biggest struggle I have is accepting that I have CF.
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Although my lung transplant was the end of one story, it was also the beginning of another, more difficult story.
There are a lot of misconceptions about illnesses. For one, you're supposed to look sick -- or like other people's perception of a sick person. Once I started to doubt myself and the gravity of my illness, I began internalizing a whole lot of guilt.
Watching a Bruce Lee movie inspired me to live my life on my terms.
Growing up, Keenan Flynn rejected what he saw as negative messages surrounding cystic fibrosis. Keenan credits a healthy mental attitude, and a non-acceptance of the negative messages about his health, for his physical development.
All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
My struggle to cope with my CF brought me to some dark places. The support of my care team helped me come to the light.
CF demands a parent's time, but childhood lessons taught me that all of my children need my love and attention.
Living with cystic fibrosis, your dreams for the future can be a little hazy. But while attending my grandmother's 90th birthday celebration recently, I was struck by an image of myself that I had never seen before: myself in the distant future.
Living with cystic fibrosis is a constant reminder of the things that have been taken from me. I feel like I've made a bargain with the devil, so to speak.