Sharing your CF story is one of the most powerful things you can do, but that can be hard for some of us. If you want to use your voice but struggle with how to get started, here are three things that helped me.
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Showing 1 - 6 of 6 results
Crystal Brown
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5 min read
206 care center directors sign a letter citing clinical consequences if decision moves forward.
News
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Dec. 19, 2022
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3 min read
During the annual event, volunteers advocated for the PASTEUR Act and the HELP Copays Act, two bipartisan pieces of legislation that could have substantial, positive impact on the CF community.
News
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March 14, 2023
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3 min read
Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.
News
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Nov. 16, 2022
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3 min read
More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community.
News
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June 27, 2022
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4 min read
Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.
News
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Nov. 23, 2022
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3 min read