A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
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As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
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The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
When our son was diagnosed with CF, the clinic director sat with me for hours answering my questions. Since that day, I have wanted to bottle up his advice and become a voice of encouragement for new CF parents.