I felt so alone as a kid being gay and having CF — there weren’t any role models in the 80s and 90s that I could look up to. Eventually, I found people who understood what I was going through and that helped me feel good about who I was, and who I am today.
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After opening up a time capsule that I put together when I was 7 years old, I decided to write my childhood self a letter, explaining how great her life is when she is 30.
I have answered questions from many about what cystic fibrosis is, but the question that I really wanted to address was: why do I believe I have CF?
Although I'm glad that my two children with cystic fibrosis will soon have the opportunity to try Trikafta, I am also a little worried about whether they will have side effects and how well they will do on the drug long-term.
Understanding that I suffered trauma from medical encounters during my childhood helped make me a more effective self-advocate as an adult.
After finally feeling like I had the right medications to manage my anxiety and depression, I started Trikafta®, and everything changed. Struck with fatigue, all I wanted to do was stay in bed.
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This program is intended to offer eligible awardees assistance with student loan payments for educational loans acquired in the pursuit of a graduate-level degree.
A diverse group of talented academic investigators leads the cystic fibrosis research community. The Cystic Fibrosis Foundation is pleased to support these investigators through a variety of opportunities.
The Cystic Fibrosis Foundation is aware that many labs and clinical studies have been impacted by the recent response to COVID-19. It is the CF Foundation's intention to work with funding applicants and CF Foundation-funded investigators to minimize the effects of the pandemic on research that is critical to advancing the mission of the Foundation.