Navigating CF is a series of short videos that help people with CF, their families, and care teams navigate complex issues. No matter where you are on your journey, Navigating CF can help.
The video series is broken up into sections that can be watched in one sitting, or over a period of time when it's convenient for you. Download one-pagers that accompany the videos, which can be found in the “Toolbox” section of the program.
Getting a denial for a cystic fibrosis treatment or service can be overwhelming. But there are steps you can take to have your claim reconsidered through the appeals process.
These short videos in the Navigating CF series can help you understand:
- Why your commercial insurance, Medicare, or Medicaid plan may deny a claim
- The basics of insurance appeals
- What your options are
Health insurance can be hard to navigate, but you are not alone.
This program covers:
-
Key insurance terms — like deductible, coinsurance, accumulator, maximizer, and more — that affect what you’ll pay out of pocket for health coverage.
-
Health insurance options for those transitioning coverage.
-
The importance of understanding provider networks when it comes to getting and affording specialized CF care.
-
The basics of prescription benefits to help you figure out coverage and cost of the CF medications you need.
Medicare is a complex program. For people with CF, it is especially important to understand how the decision to go on Medicare will affect how you receive and pay for your health care.
The videos in the Navigating CF series address common questions and concerns about Medicare and CF, including:
- The basics of Medicare and how the government benefit program works
- The different types of Medicare coverage available
- Choosing a Medicare plan
- Managing the high cost of Medicare with CF
- Medicare coverage of common CF medications, including what’s covered under Part B vs Part D
- Medicare coverage of major health transitions — from CF-related diabetes to transplantation
It’s common for people with CF and their families to need help with health-related social needs such as getting enough food, covering transportation costs, and paying utility bills.
The short videos in this series address:
-
What health-related social needs are
-
How unmet health-related social needs and CF can impact each other
-
Tips and resources to help you access food, transportation, utilities, and internet
There’s a lot for young adults to consider when transitioning to financial independence. This is especially true when you have cystic fibrosis and start to take on the costs of CF care, navigate insurance, and manage all your other life needs. Remember, you are not alone.
The short videos in this series talk about:
- Big health insurance transitions, like aging off Medicaid or a parent’s plan
- Avoiding coverage gaps and choosing new insurance
- Leveraging employer benefits at a new job
- Thinking proactively about life’s next big steps
- Making a financial plan that keeps coverage, costs, and life with CF in mind
Contact a dedicated CF Foundation Compass case manager:
Call us at 844-COMPASS
(1-844-266-7277)
Mon - Thu, 9 am - 7 pm ET
Fri, 9 am - 5 pm ET