Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Learn more about the Foundation's Conscientious Employee Policy.
The Cystic Fibrosis Foundation Standards of Conduct and Code of Ethics require employees to observe the highest standards of professional and personal ethics in the conduct of their duties and responsibilities. Employees and representatives of the organization must practice honesty and integrity in fulfilling their responsibilities and comply with all applicable laws and regulations.
The objectives of the Cystic Fibrosis Foundation Conscientious Employee Policy are to establish policies and procedures for:
Informed and alert employees play a critical role in protecting the CF Foundation from illegal acts, fraud, and abuse. The occurrence of such misconduct threatens the CF Foundation's ability to perform its operations and complete its mission. Therefore, each employee of the CF Foundation has an obligation to report in accordance with this Policy (a) questionable or improper financial or accounting matters, (b) violations or suspected violations of the CF Foundation's Standards of Conduct, and (c) violations or suspected violations with regard to illegal acts, fraud or abuse (hereinafter collectively referred to as Concerns).
Fraudulent or illegal acts addressed by this policy include but are not limited to the following:
Employees cannot exempt themselves from the consequences of their own misconduct by reporting the issue, although self-reporting may be taken into account when determining appropriate disciplinary action.
Anyone reporting a Concern must act in good faith and have reasonable grounds for believing the information disclosed indicates an improper financial or accounting practice, violation of the Standards of Conduct, violation of the Code of Ethics, or fraud. The act of making allegations that prove to have been made maliciously, recklessly, or with the foreknowledge that the allegations are false, will be viewed as a serious disciplinary offense and may result in discipline, up to and including termination.
All reported Concerns will be forwarded to the CF Foundation Board of Trustees Audit Committee Chairman in accordance with the procedures set forth herein. Management will be responsible for investigating all Concerns unless the Audit Committee Chairman deems that the Audit Committee should perform the investigation.
This whistleblower policy is intended to encourage and enable employees to raise Concerns within the Foundation for investigation and appropriate action. Retaliation includes, but is not limited to, the discharge, suspension, or demotion of an employee or other adverse employment action taken against an employee in the terms and conditions of employment. Any form of retaliation against an employee who reports a Concern in good faith is strictly prohibited, and any employee who commits or condones any form of retaliation will be subject to discipline up to, and including, termination. Employees who believe they have been retaliated against should contact the Vice President of Human Resources.
Employees are strongly encouraged to report problems and concerns, via their direct supervisor, the Internal Audit Group, or the Vice President of Human Resources. If an employee prefers, an independent hotline is available to report Concerns anonymously or in confidence. The independent hotline accepts calls 24 hours a day, 7 days a week.
Management shall promptly address all reported Concerns. Depending upon the nature of the allegations, management may conduct an investigation to determine the appropriate corrective action, if needed. The Audit Committee Chairman will be informed of the status of all Concerns and the resolution of Concerns will be discussed with the Audit Committee.
If deemed necessary by the Audit Committee Chairman, the Audit Committee has the authority to retain outside legal counsel, accountants, private investigators, or any other resource deemed necessary to conduct a full and complete investigation of the allegations.
Reports of Concerns and related investigations are kept confidential to the extent possible, consistent with the need to enable an investigation and as required by law. In certain cases, the Foundation may be legally compelled to disclose the identity of an individual reporting a Concern. If possible, the Foundation will attempt to give the individual reporting the Concern notice and obtain consent prior to releasing information about the individual reporting the Concern. When possible, the Foundation will inform the individual reporting the Concern of the status of the investigation. The disclosure of reports of Concerns to individuals not involved in the investigation is viewed as a serious offense and may warrant severe disciplinary action.
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Cystic Fibrosis Foundation
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