Our Approach to Federal, State, and Local Policy

Alongside the cystic fibrosis community, we advocate for access to highly specialized CF care, programs, agencies, and policies that help advance research and drug development. We also raise awareness about the disease.

Learn More About How We Advocate for the CF Community

With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to high-quality cystic fibrosis care that is affordable and adequate, and support drug discovery and development.

• The Affordable Care Act and Cystic Fibrosis
• COVID-19 Triage Plans and Cystic Fibrosis
• Paid Family Medical Leave and COVID-19: An Overview
• Ensuring Access to Care

View All Our Policy Priorities Resources

As federal and state governments continue to assess and propose changes to the health care system in the United States, the Cystic Fibrosis Foundation is closely monitoring and engaging on these issues that could impact a person with CF and their ability to access the highly specialized care they need.

• Preserving Access for People with CF: The Importance of Cost and Affordability
• ICER and CFTR Modulators
• Protecting Access to Medicaid for Adults With CF
• Advocacy News

View All Current Policy Issues Resources

The Congressional Cystic Fibrosis Caucus unites bipartisan members from both chambers to raise awareness for CF; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable care for people living with CF.

Learn More About Congressional Cystic Fibrosis Caucus