Recover lost or damaged medications, medical equipment, and supplies. Start with your pharmacy first to obtain an emergency refill. If your prescriber cannot be reached, some states allow pharmacists to provide emergency refills without a prescription. Replacing medical supplies or devices will still require a prescription. Make sure to get the correct fax number for the pharmacy to send the prescription.
The mother of a child with CF contacted Compass for assistance with replacing Pulmozyme®, Tobi®, and an airway clearance device after the medications and the device were destroyed by Hurricane Florence. A case manager was able to assist with replacing medications and getting a new vest at no cost to the family.
Properly ship replacement medications. If your medications are being shipped and the U.S. Postal Service is unavailable at your residence, arrange an alternate physical location where the shipment can be delivered or picked up. Often local pharmacies, hospitals, medical clinics, shelters, or hotels will accept the delivery if you discuss those arrangements prior to delivery. When the prescription is verified, your pharmacy will contact you to arrange shipment. Remember to ask for shipping and tracking confirmation numbers. In most cases, the package can be sent overnight. If you have not heard back from your pharmacy within 3-4 hours, place a follow-up call to obtain shipment tracking information.
Contact your CF care center when the prescription is needed. Provide your full name, date of birth, name of medications, fax number to send the prescription, and shipping address. Call the pharmacy in 1-2 hours to confirm they received the fax, as the pharmacy may not see incoming faxes immediately.
Contact supportive organizations. Contact organizations that help with disaster recovery of your home, belongings, and medical supplies. Contact your homeowner's insurance agent first. Then, if you have unmet needs, apply to the Federal Emergency Management Agency (FEMA) -- a government agency designed to provide relief aid during times of emergency and assistance such as grants for temporary housing, rental assistance, and home repairs. Even if you have insurance, registering for FEMA is important. FEMA cannot duplicate insurance payments, but if your home is impacted by a natural disaster, FEMA recommends you apply for assistance. There are three ways to apply:
Apply for low-interest disaster loans. Low-interest disaster loans from the U.S. Small Business Administration (SBA) may be available to cover losses not fully compensated by insurance. To be eligible for SBA disaster loans, you must be in a government-declared disaster area. Those eligible for disaster assistance funds may also receive a low-interest disaster loan application from SBA. You do not have to accept the loan, but you must complete the application and return it to the SBA to remain eligible for other types of federal assistance. To apply for loans, you can:
If you have other needs, contact FEMA at 800‐621‐3362 for referrals for Other Needs Assistance, which can help with:
- Medical and dental expenses
- Repair, cleaning, or replacement of:
- Household items
- Specialized tools or protective clothing and equipment required for your job
- Necessary education materials (school supplies, school books, and computers)
- Clean-up items such as a wet/dry vacuum, air purifier, or dehumidifier
- Fuel for primary heat source (heating oil or gas)
- Repairing or replacing vehicles damaged by the disaster or providing public transportation or other transportation costs
- Funeral and burial costs
- Moving and storage expenses
- Other necessary expenses or serious needs
A person with CF contacted Compass for assistance with refilling a prescription during an emergency. The family had already evacuated without one medication that was out of stock at their local pharmacy. A case manager was able to facilitate sending a new prescription to the closest pharmacy to where they had evacuated.
You are not alone. If you would like additional assistance finding and accessing resources, please contact Compass at 844‐COMPASS (844-266‐7277) Monday through Friday, 9 a.m. until 7 p.m. ET. All calls related to natural disasters will be handled urgently. You can also email firstname.lastname@example.org. You can also check our website to learn if Compass has extended its hours during national disasters or emergencies.
Los Administradores de Casos de la Fundación Fibrosis Quística de Compass -- quienes hablan Inglés y Español -- están disponibles para trabajar con los afectados, uno a uno. Por favor póngase en contacto con la Fundación Fibrosis Quística Compass al 844-COMPASS o (844-266-7277).