Get Help With CF Foundation Compass

People living with cystic fibrosis and their families face complicated issues related to getting the care they need. CF Foundation Compass makes sure that no one has to do it alone.

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In this article
  • Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey. 
  • AIRS-accredited Compass  case managers help with complex challenges, including understanding insurance basics, troubleshooting insurance coverage issues, seeking financial assistance for medical care and other living expenses, finding answers to legal questions related to work, school, disability/government benefits, and much more. 
  • Get help by calling 844-COMPASS (1-844-266-7277), emailing, or submitting an online request form.

How Compass Can Help

CF Foundation Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families in all stages of their CF journey a partner in dealing with challenges related to life with CF, so they can focus on what is important to them.

The official Inform USA accreditation logo

Fully accredited from Inform USA (formerly AIRS) — the sole source of standards, accreditations, and certification for the community information and referral sector — Compass offers people in the CF community with premier quality and effective service while adhering to the best and latest industry practices.

Compass has helped thousands of people with CF and their families deal with all kinds of issues. If you are dealing with a problem, we've likely heard it before and can work with you to find solutions.

Our team of Inform USA-certified case managers strives to provide excellent service to anyone living with CF or their loved ones, regardless of income or insurance status, and the service we provide is completely free and confidential. We listen closely, explain thoroughly, and work through issues from start to finish.

We can:

  • Help you understand your insurance options by providing a side-by-side comparison of available plans during open enrollment or special enrollment periods so you can make a well-informed decision about your coverage
  • Look into what your insurance plan covers and how much visits, services, and medications will cost
  • Troubleshoot whatever insurance challenges you are facing
  • Refer you to financial assistance programs and resources that you may be eligible for to help with the cost of medications, treatment, and other living expenses
  • Get answers to legal questions about the laws that protect your rights as a person with CF, particularly in the areas of employment, education, and disability benefits
  • Plan for a transplant, such as verifying coverage for the procedure and treatments, looking for temporary lodging near a transplant center, and looking for transplant grants
  • Share other tools and resources, including the CF Resource Database — our self-guided search tool

While the Compass team can help you with many of life's challenges, there may be instances where we have to decline assistance for certain topics outside of our scope of services. For example:

  • We do not provide clinical information. The best source for this is your care team
  • We do not provide mental health counseling. We can, however, help you find counselors in your community
  • We do not give out money. We can connect you with organizations that may be able to provide financial or other assistance
  • We do not provide legal advice. We can refer you to resources that provide legal information or assistance
  • We do not recommend specific for-profit businesses, products, or services
  • If you are in need of assistance, but do not have cystic fibrosis, or are not caring for a person with cystic fibrosis, we may not be able to assist you
  • If you reside outside of the U.S., our expertise is focused on navigating the U.S. healthcare system and financial resources available to U.S. residents, so our scope of assistance to you may be limited

This list is not comprehensive. The best way to find out if Compass can help you is to connect with a Compass team member today. You can learn more about how case managers help thousands of people navigate challenges, find resources, and tackle life issues and Compass’s impact on the CF community here.

CF Resource Database

Interested in exploring options yourself? Find the support you need from verified resources using the CF Resource Database — our self-guided search tool. You can search hundreds of organizations that our Compass case managers recommend most frequently to people with cystic fibrosis and their families. If you need help navigating the CF Resource Database, finding resources, or are looking for more customized solutions, a Compass case manager is ready to assist you.  


Compass Case Managers

Inform USA-certified Compass case managers are caring and knowledgeable patient advocates specialized in helping you navigate CF-related issues. The team is trained and certified in making referrals to community organizations' programs and vetting information about their programs and services.

Compass has case managers who speak Spanish and can help support non-English speaking people with CF and their families through interpretation services.

Hours of Operation

Our regular hours of operation are Monday through Thursday, 9 a.m. until 7 p.m. ET and Friday, 9 a.m. until 5 p.m. ET. (June - August: 9 a.m. - 3 p.m. ET). Compass is closed during the following times so that case managers can spend time with their families:

  • Monday, Jan. 15, 2024
  • Friday, Feb. 16, 2024 (3 p.m. - 5 p.m. ET) 
  • Monday, Feb. 19, 2024
  • Friday, May 24, 2024 (3 p.m. - 5 p.m. ET)
  • Monday, May 27, 2024
  • Wednesday, June 19, 2024
  • Thursday July 4 and Friday July 5, 2024
  • Friday, Aug. 30, 2024 (3 p.m. – 5 p.m. ET)
  • Monday, Sept. 2, 2024
  • Wednesday, Nov. 27 through Friday, Nov. 29, 2024
  • Tuesday, Dec. 24 and Wednesday, Dec. 25, 2024
  • Tuesday, Dec. 31, 2024 and Wednesday, Jan. 1, 2025

Connect with Compass

Get help by calling 844-COMPASS (1-844-266-7277) to speak with a dedicated case manager. You can also email us at or submit an online service request.

Submit an online service request

**NOTE: It may take 3-5 business days for your case manager to review your email or Compass Online Service Request form before contacting you. If you need immediate assistance within the next 1-2 business days, please call Compass at 844-COMPASS (844-266-7277). If this is a medical emergency, please call 9-1-1.

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Contact a dedicated CF Foundation Compass case manager:
Call us at 844-COMPASS

Mon - Thu, 9 am - 7 pm ET
Fri, 9 am - 5 pm ET

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