To move away from a one-sided conversation about “adherence” to prescribed medications toward supporting “partnerships for sustaining daily care,” it is important to acknowledge that these conversations can be awkward or difficult. But over time, these conversations can get easier as the interactions between people with cystic fibrosis, their families, and care teams grow into trusting partnerships.
This is why we invite you to share your stories or brief moments of care encounters -- good and bad -- so your insight can be used to promote a dialogue and exchange perspectives surrounding partnerships for sustaining daily care.
Partnerships for Sustaining Daily Care: Problem-Solving to Address Barriers
These stories will be used to identify strategies, conversation styles, and tips to share with care teams, adults with CF, and their families so that they can apply the PSDC concepts into their regular clinical practice and daily care routines.
So after you read this, take the time to self-reflect. Draw on your own experiences where you've had conversations (good or bad).
We also ask you to help develop, test, and adopt the most effective ways to maintain daily care -- informed by your own personal experiences and those around you -- to be vocal champions to spread these ideas among our broader community.
Join the Conversation
Send us an email and share your story or ideas about sustaining daily CF care. We're listening at PSDCteam@cff.org.