Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Snellings Walters, a long-time sponsor of Great Strides, formed Insure the Cure, an alliance with the insurance industry of Atlanta to raise awareness and help find a cure for cystic fibrosis.
In 2011, the Atlanta insurance community came together for the first time to form an alliance called Insure the Cure in support of the Cystic Fibrosis Foundation. Insurance agencies, companies, brokers and reinsurers from across the city joined forces to raise awareness about cystic fibrosis and fundraise in support of a cure for this devastating disease. The effort was led by Snellings Walters Insurance Agency.
In the same way that many great initiatives are born, the beginning of Insure the Cure was serendipitous. Clay Snellings' youngest daughter, Emily, was diagnosed with CF at three months old. Clay, a partner at Snellings Walters, felt fortunate that from the beginning Emily received the highest-quality care and treatment for CF. While they participated in a few Foundation events, Clay kept his working life and his family's fight against CF separate.
That was until Clay had to cancel a business trip with Chubb Insurance so he could be with Emily, who had landed in the hospital. By a strange twist of fate, Chubb was a company dedicated to participating in the Foundation's
Great Strides walks each year. The company asked Clay and his colleagues at Snellings Walters to join them. They did -- and raised $35,000 in the walk in 2011.
For Clay, that was the beginning of Insure the Cure. The partners at Snellings Walters rallied around him and his family to raise awareness and support the Foundation -- something so personal and meaningful for the Snellings family -- that it became the cornerstone of Snellings Walters' community service.
“I've been honored to be a leader and help raise awareness about cystic fibrosis with my colleagues in the insurance industry -- not just for my family and Emily, but for the more than 30,000 people across the country with CF that need help and can't fight this disease alone,” Clay said.
At the next Great Strides, Clay and the partners of Snellings Walters reached out to insurance vendors, partners and suppliers to share their commitment to finding a cure for CF and ask for help. They doubled their donations and brought in more than $70,000.
After becoming the Great Strides presenting sponsor in Atlanta in their third year of participating, Snellings Walters officially formed Insure the Cure and invited the entire insurance community of the city to join them at the walk. Initially, eight teams joined. Today, 40 teams make up Insure the Cure. Together, they have raised more than $1.2 million over the last six years.
“The incredible thing about Insure the Cure is that we're not only raising money, telling the story of people with CF and promoting the work of the Foundation -- we're showing our CF community that the insurance community cares about people with CF,” Clay said.
Clay has his sights on encouraging other industries across the country to help find a cure for CF.
“I've been part of this industry for 30 years, my whole career, and I see Insure the Cure as a great way for national teams to be more effective,” Clay said. “Our 10-year vision is to have the program in half the cities hosting Great Strides walks.”
Insure the Cure efforts have expanded beyond Atlanta to New York City, Nashville and other cities -- and has a goal of recruiting 50 teams for their local Great Strides walk. And, programs such as Banking for a Cure have worked with Clay to organize other companies in their respective industries to come together to fight CF.
If you're interested in joining Clay and beginning an industry alliance in your city, please contact Elizabeth Thompson at
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