Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
The Cystic Fibrosis Foundation's Greater New York Chapter recently recognized leading journalist Scott Pelley at the 14th annual Breath of Life Gala for his unwavering dedication to those living with CF.
Published on December 19, 2017
More than 500 friends and supporters of the Cystic Fibrosis Foundation gathered together at Cipriani 42nd Street for a festive evening at Greater New York's 14th annual Breath of Life Gala. It was a night to remember as generous donors collectively raised $1.4
million for vital CF research, care, and medical programs. During the event, acclaimed news reporter Scott Pelley was given the Breath of Life Award for his dedication to the Foundation's mission.
“In our community, Scott Pelley's enduring and tireless dedication is legendary,” said Michael Boyle, M.D., senior vice president of therapeutics development at the CF Foundation, who presented the award to Pelley. “With no direct connection to CF, Scott
was inspired to support our mission because of a friend of the family who had the disease.”
For more than a decade, Pelley made thousands of people more aware of cystic fibrosis -- conveying how challenging this disease is and the continued need for support. He did news broadcasts about cystic fibrosis, welcomed attendees to the North American Cystic Fibrosis Conference,
and emceed the New York Breath of Life Gala for over a decade, making it one of the most successful CF fundraising events in the country. He also supported the Metro D.C. Chapter's Breath of Life Gala.
“So passionate was Pelley about helping those battling CF that he once caught a late flight back from a breaking news story in Europe to emcee this gala,” Boyle said. “The thoughtfulness, compassion, and integrity that have distinguished Scott's news
career have also graced all of his efforts on behalf of people living with this disease.”
Pelley, his wife, Jane, son, Reece, and daughter, Blair, have all selflessly embraced the Foundation's mission. Pelley is among the most experienced reporters in American journalism, having served as a correspondent for 60 Minutes and as an anchor
and managing editor of the CBS Evening News. For almost 30 years, he has covered the major stories of our times.
Watch this tribute to Pelley, which was played at the Gala.
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