About Our Board Chair, KC White

Learn more about KC White, chair of the CF Foundation’s Board of Trustees.

2 min read

KC White was elected chair of the Cystic Fibrosis Foundation’s Board of Trustees in 2022 after serving on the Board since 2005. Diagnosed with cystic fibrosis at age 3, White has been a committed volunteer and inspiring advocate for the Foundation since childhood, speaking at her first Foundation event when she was only 9 years old. She is the first person with CF to serve as board chair.

A founding member of the Foundation’s Adult Advisory Council, she served as its chair from its inception in 2014 to 2022. White was also the co-chair of the first BreatheCon, an annual virtual conference for adults with CF. In 2020, she envisioned and created ROSE UP, a national virtual fundraising event led by a committee of adults with CF.

Following her graduation from the University of Richmond in 2001, White set out on the Tour for a Cure, a nationwide, 28-city trip to every Major League Baseball stadium, which raised tens of thousands of dollars and educated millions of people about CF. That same year, the CF Foundation presented her with the prestigious Alex Award, which honors a person with CF who is a role model to others living with the disease. She is also a recipient of the Michael Brennan Courage Award given by the Boomer Esiason Foundation to an individual living with CF who has shown tremendous courage in achieving their life goals.

White received her Master of Applied Positive Psychology from the University of Pennsylvania in 2022 and currently serves as an assistant instructor in the program. She is also the Head Varsity Women’s Lacrosse coach for the Chagrin Falls, Ohio, Tigers. She and her husband, Justin, have one son, Mac.

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