The CF Foundation is committed to ensuring the perspectives of adults with CF, and all community members continue to inform and strengthen our work.

Since its launch in 2014, the CF Adult Advisory Council (AAC) has played a pivotal role in deepening the Foundation’s understanding of the experiences and priorities of adults with CF across health, wellness, work, relationships, and daily life. Insights from the AAC have helped shape programs, events, and initiatives across the organization.

Over time, the Foundation has expanded and embedded opportunities to hear from a broader range of adults with CF. As part of this evolution, the Foundation will conclude the Adult Advisory Council in May 2026 and continue building on its legacy through new ways to engage the community.  

Community Voice will continue to serve as the Foundation’s primary way of engaging people with CF and their families, creating ongoing opportunities to share experiences and perspectives that help to inform CF research, care, and programs. With more than 2,300 members and growing, Community Voice helps reflect the unique journeys of those living and impacted by CF.

Learn more about Community Voice and sign up to help make a difference for every person affected by CF.