The CF Adult Advisory Council (AAC) is a rotating group of adults living with CF that lend their voices to convey the hopes, needs, and aspirations of the CF adult community by tapping into the strengths and expertise of other community members.
The AAC provides advice with a focus on the perspectives from adults with CF to the senior leadership of the Foundation and its Board. The AAC also serves as a connection between the Foundation and the adult CF community, consulting on various activities and programs.
The AAC is responsible for the following:
- Providing insight on living with CF as an adult, from sharing personal experiences and through involvement with others in the community
- Identifying ways that the CF Foundation can better partner with people with CF through its programs and mission
- Offering guidance and advice on various CF Foundation initiatives, projects, topics, and resources
- Serving as reviewers for Impact Grants
The work of the AAC enhances communication between the CF community and the Foundation, demonstrates the Foundation's commitment to partnering with all people with CF, and helps identify areas of opportunities to meet the diverse needs of the CF community.
To learn more about the AAC and other ways the CF community is making a difference across CF care, research, and community programming, please read the Community Voice 2023 Year in Review Report.
2024-2025 Council Members
Chad Riedy, Chair, Alexandria, Va.
Rae Alder, Salt Lake City, Utah
Art Brace, Belmont, Calif.
Aaron Britton, Newtown, Conn.
Jaelyn Cooper, Dallas, Texas
Steph Hansen, San Antonio, Texas
Jennifer Kyle, Bowling Green, Ky.
Kasey Raffensperger, Hoboken, N.J.
Luis Ramirez, McAllen, Texas
Shelby Luebbert, St. Louis, Mo.
KC White, Chagrin Falls, Ohio