The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Being a part of the CF Foundation has given me so much more than I could have ever imagined. That is why my wife, Nanette, and I have made a commitment to people with cystic fibrosis for years to come by making a legacy gift, an enduring statement of our values.
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Every year, hundreds of thousands of people raise millions of dollars for Great Strides -- the CF Foundation's largest national fundraising event. But did you know that the staff of the national office in Bethesda, Md., form their own department teams and also raise money alongside the CF community?
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I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
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Read how one grandmother is adding tomorrows.
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Ever wonder, “Does my donation make a difference?” For people with cystic fibrosis like Jake Bachman, your generosity will give him a chance for the future. This Giving Tuesday, give to an organization that's determined to find a cure for all people with cystic fibrosis.
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An award-winning chef shares his recipe for people with cystic fibrosis, just in time for the holidays.