Jake Bachman is a 31-year-old husband, father and proud member of our growing cystic fibrosis adult community. He plays an active role in fundraising for the CF Foundation to support the search for a cure, and participates frequently in CF clinical trials.
Yet, despite recent medical breakthroughs in CF research, Jake is still waiting for a treatment that will target his CF mutations.
And he is waiting so that he may have a brighter future with the light of his life: his young son, Gavin.
For Jake, the day that Gavin was born was the happiest day ever … but also the scariest. He knows that their time together could be limited. Every day, Jake looks at his son and wife, and thinks, “what if?”
What if I'm not healthy enough to teach Gavin how to play ball?
What if I get sick and can't make it to his graduation?
What if I lose my fight and Gavin has to grow up without a father?
"I hate asking myself these questions, but it's the reality that I must face because there is still no cure for cystic fibrosis. The median survival age for someone with this disease is around 40, and I am now 31,” says Jake.
Jake's wish is simple: he wants to live long enough to watch his son grow old.
This Giving Tuesday, donate to an organization that's determined to find a cure for Jake, and for all people living with this terrible disease. Whether you can give $5, $50 or $500, your support can make a difference.