The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
BLOG
Sometimes during weak moments, when my lung function has dropped despite doing everything in my power to hold off the destruction, I think, “What's the point?” Then I remind myself of the larger goal …
BLOG
I definitely attribute much of my good health to my support system. This disease would be much harder alone.
BLOG
Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.
BLOG
Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
BLOG
In our first 2016 “Living Today” video, Wes Parsel, 27, talks about almost everyone's New Year resolution: exercise. The big difference is that he's been doing this his whole life, in addition to his daily treatment routine.
BLOG
Positivity and the opportunity to be around for the “long haul” are what motivate Dana Curry to do her daily treatments. Hear Dana's top tips for staying on top of her CF treatment plan.