The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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People often envied my skinniness, but they didn't realize that CF made it difficult for me to want to eat -- or to get enough nutrients from -- the food that I did.
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After my grandmother's health improved on a plant-based diet, I decided to try it for myself with the help of my cystic fibrosis care team dietitian. Not only are my lung function and energy better, but my weight is stable too.
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After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren't prepared for was the difference it made in his health, energy levels, and personality.
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Thinking of a food elimination diet? I tried one and learned some lessons along the way.
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My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.
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When I first got an enteral feeding tube as a teenager, I had no idea how many doors it would open for both my health and my involvement with the cystic fibrosis community. Fifteen years later, here's how I'm doing today.
