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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Why I Decided to Join a Clinical Trial on My 12th Birthday

Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here's why I decided to say yes.  

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| 4 min read
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WATCH: New Developments in Drugs to Reduce Inflammation, Feb. 2016

Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.

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| 1 min read
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Here’s How I Created a Patient Advisory Council

Sometimes, being the “squeaky wheel” is the only way to make a positive change.

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| 5 min read
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There Is No Health Without Mental Health

In the third plenary of NACFC, three guidelines authors announced the publication of guidelines for screening and treating depression and anxiety, and explained how the guidelines were developed. Read on for my thoughts.

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| 4 min read
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Opening Doors to CF Clinical Research

There have never been as many new CF drugs in development as there are today. In the second plenary at NACFC, Dr. George Retsch-Bogart outlined the progress we've made, the road ahead and the changes needed to make it all possible. Read on for my key takeaways.

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| 3 min read
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The Future of Personalized Medicine

There's a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now and what the future holds. Read on for a quick recap.

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| 4 min read