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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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What We're Thankful For

We used social media to ask you what you're thankful for this year. Check out some of your highlights!

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Nov. 23, 2016 | 4 min read
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How I Got My Mom to See Me as an Adult in Charge of My Own CF Care

Here's my experience with that awkward moment when you have to tell that one person who has always been there for you your whole life that they need to just let go a little bit.  

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Nov. 11, 2016 | 5 min read
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Buying a Home: Tips From a Realtor With CF

As a real estate broker, I was already familiar with the first-time home buying process when my husband and I began our own house search. But little did I know that my CF would make me my toughest client yet.

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Oct. 11, 2016 | 4 min read
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Finding a Balance Between CF and Childhood

Protecting your children with CF, at all costs, sounds like a loving thing to do until you consider what it may cost them. To keep a balance between their health and healthy childhood development, my husband and I have learned that it takes a prudent approach with careful and creative decision making. 

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Sept. 25, 2016 | 5 min read
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Why We Decided Not to Have Kids

As soon as my husband and I got married, people immediately began asking us about if and when we would have kids. But three dogs, no children, countless travels and 10 years of marriage later, we feel like our family is complete just the way we are.

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Sept. 7, 2016 | 4 min read
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Changing Perspectives: Lessons of a CF Caregiver

Time after time, cystic fibrosis has shown me that what I thought was important could change with changing circumstances.

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Aug. 31, 2016 | 5 min read