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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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What I Learned About Treating NTM at NACFC
Dec. 10, 2020 | 3 min read

Even though I haven't cultured for nontuberculous mycobacteria, I was excited to learn more about the treatment for the bacteria in people with cystic fibrosis during the virtual session at the North American Cystic Fibrosis Conference.

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Tips for Surviving Home Isolation From a Person With CF
April 30, 2020 | 4 min read

People who are not used to isolation may feel bored during this pandemic-driven physical distancing. But people with cystic fibrosis are experts at keeping themselves busy and fulfilled at home.

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Facing the Monster: My COVID-19 Experience
April 10, 2020 | 8 min read

Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.

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Tips on Surviving Quarantine From a Person With CF
March 27, 2020 | 4 min read

Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.

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Watch the Vlog: 2 Sisters Talk Five Feet Apart
March 5, 2019 | 1 min read

Watch our vlog to hear us discuss the upcoming film, Five Feet Apart.

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A CF Nurse Practitioner Talks IPC and Five Feet Apart
Feb. 5, 2019 | 6 min read

With Five Feet Apart hitting theaters in March, we've been getting some questions about infection prevention control (IPC) and what the film might mean for the CF community. Here's what our CF center and hospital have been doing to support the IPC guidelines and encourage questions among our patients and families.

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