The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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In just four short years, Karen Sani has become the ultimate CF Foundation teamMATE at the Northeastern New York Chapter. She is an inspirational volunteer who motivates everyone around her to support those with cystic fibrosis.
April 29, 2016
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4 min read
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I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
April 18, 2016
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3 min read
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My advice to all of you … CONNECT, CONNECT, CONNECT with others who share your passion in the fight against cystic fibrosis.
March 24, 2016
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4 min read
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Today I am proud to introduce More Than CF. Your struggles, your achievements, your routines and the small surprises of your every day breathe life into the Foundation's work. You can get involved by sharing your experiences with us on Facebook, Twitter and Instagram and by searching #morethanCF.
March 14, 2016
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3 min read
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Join us via live stream for the 2016 CF Foundation Volunteer Leadership Conference and make your voice heard.
March 3, 2016
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2 min read
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Meet Hal Leshner, first-time hiker in the CF Foundation's Xtreme Hike, a fundraising event that challenges members of the CF community, and their families and friends, to take on the great outdoors.
Nov. 19, 2015
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4 min read