Attend our Volunteer Leadership Conference in Your Own Home: Join the Live Stream

Join us via live stream for the 2016 CF Foundation Volunteer Leadership Conference and make your voice heard.

| 2 min read
Danielle Cipriani

The need to find innovative ways to include the cystic fibrosis community is at the forefront of our minds. We want to ensure that people with CF and their families do not feel isolated or excluded in conversations about their care and wellbeing. We feel that it's important to include their voices in everything we do, especially in our conferences.

On March 11-12, we are hosting our annual Volunteer Leadership Conference and we'd like to invite you to join us via live stream and make your voice heard from the comfort of your own home or favorite coffee shop.

You will be able to ask questions throughout the conference and connect with us on our social media channels using the hashtag #CFVLC2016. We want to hear your thoughts and ideas on the various topics discussed throughout the conference.

Left: Cheriz Kunkel joins the conversation by tweeting while doing her breathing treatments during the 2015 Volunteer Leadership Conference. Right: Marissa Benchea moderates the first ever panel discussion between adults with CF at the Volunteer Leadership Conference in 2014.

 The 2016 Volunteer Leadership Conference marks the third year that we will host a panel discussion between adults with CF regarding topics identified by, and for, the CF adult community. Be on the lookout for the CF adult panel, moderated by Andy Lipman, who recently invited us into his home to learn more about his life with CF. Andy will moderate a discussion focusing on relationships -- between significant others, friends, parents and children -- alongside Julia Rae and Katharine Scrivener.

Kristin Dunn moderates a discussion between two adults with CF during the 2015 VLC. The primary focus of this panel was on cystic fibrosis as an invisible disease and how people with CF engage with each other and the CF community.

Register for the live stream today and watch this session as well as many others, including the "State of the Science" update and "Advancing the CF Care Model."

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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Danielle listens to and partners with people with CF and their families to create meaningful opportunities for connection. She also leads the creation of online spaces and events for people in the CF community to connect, learn, share and inspire each other. Danielle earned her B.A. in communications from American University in Washington, D.C. She currently lives in Littleton, Colo., with her husband Vince and dog Baci.

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