The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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As a parent of two kids, I find myself wondering if Anna's CF is changing Jack. Would he feel the same responsibility for her if she didn't have CF?
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During our family round trip from Oklahoma to Florida, I learned a thing or two about traveling with a CF tot.
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I read the blogs and stories parents write about their compliant CF kids, I hear CF adults speak about never missing a treatment or medication, and despite my best efforts, I am fighting a battle I never imagined with Betsy.
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When life was crazy busy having two babies born with CF, Marc and I would wake up 20 minutes earlier to make time for a cup of coffee together.
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The road to rebuilding shattered dreams is not a straight one.
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Today, my son Eric turns 24. He has his own house. He has a career in finance at Merrill Lynch. He has cystic fibrosis.