The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Dr. Jennifer Taylor-Cousar is passionate about bringing attention to health inequities in cystic fibrosis. By partnering with the CF Foundation, other organizations, and the CF community, she believes we can work together to create equitable health outcomes for everyone with CF.
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Over the years, I have received some tough questions from children with CF, but one has really stuck with me. And if I were asked it again today, I know exactly what I would say.
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Our latest “Living Today” video features Stacy Motenko, 28, who refuses to let CF limit her dreams. Hear Stacy's story.
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There comes a time when all cystic fibrosis patients must come out of the closet.
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I have found my existence as a cystic fibrosis adolescent to be very interesting. This is mostly because in addition to the acne and braces and intense hormonal imbalances, there was always my CF.
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I remember the first time that I understood that cystic fibrosis made me different.