Meet Stacy Motenko

Our latest “Living Today” video features Stacy Motenko, 28, who refuses to let CF limit her dreams. Hear Stacy's story.
Oct. 16, 2015 | 2 min read
Carolyn-Kilkus
Carolyn Kilkus
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I had so much fun meeting Stacy’s friends and family on this shoot. Not only are they super supportive, but they’re really funny too!

In this “Living Today” film shoot, I felt incredibly honored to be tagging along with Stacy, 28, and her parents to go bridal dress shopping. Little did I know, I was about to experience a whirlwind of emotions as Stacy tried on wedding gowns for the first time since her engagement to Danny, the love of her life.

For anyone, this is an incredible moment, but for Stacy and her parents it's more than just the beauty of finding “the one.” It's also about her living past what her parents were told her life expectancy would be when she was born -- 18 years. Advancements in cystic fibrosis medicine and research have given Stacy the chance to have a future, to follow her dreams and get married -- things that Stacy and her parents thought she would be unable to do.

Be prepared, because this story is about to make you feel all tingly inside.

A special thanks to Laurel Mungo, owner of Mon Amie Bridal Salon, in Costa Mesa, Calif.

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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Carolyn-Kilkus

In her role as video manager, Carolyn produces and directs most of the Foundation's video content. Her love and passion for video goes hand-in-hand with her love and passion for sharing the stories of people with CF and helping to spread awareness of the disease. Carolyn earned her B.S. in mass communications from Frostburg State University in Frostburg, Md. She currently lives in downtown Bethesda, Md., with her husband Jay.
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