The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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To my body: we've been through so much and cystic fibrosis has beaten us down, but I want to thank you for never giving up on me.
June 4, 2019
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3 min read
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I've learned to stop feeling guilty about all that I can't do and to focus on making a larger impact with the things that I can.
May 29, 2019
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4 min read
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As a child, I mourned the loss of my sister and brother to cystic fibrosis, so much so that I avoided any and all things that had to do with CF. Last year, a person with CF helped me confront that fear, leading to an unexpected, but cathartic, outpouring of grief.
March 25, 2019
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6 min read
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Taking a therapeutic writing course helped me cope with my cystic fibrosis, which also helped me connect more strongly to the CF community.
March 4, 2019
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5 min read
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Taking a step back and taking a break from social media helped me to realize that it's okay to have a definition of health and wellness that looks completely different from anyone else.
Feb. 13, 2019
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5 min read
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Many people with cystic fibrosis are counting on cystic fibrosis transmembrane conductance regulator modulators to improve their overall health. I'm learning that they have effects I hadn't counted on.
Feb. 11, 2019
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7 min read