The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Because I have cystic fibrosis, people are often shocked when I tell them that I'm a fire chief and an in-flight paramedic. Although the road has been difficult, I am driven to test my potential and fulfill my dreams.
April 25, 2017
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4 min read
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Many of the people I thought I could count on disappeared during a period when my health declined. Losing those people helped me discover that my real support network was made of the friends who stuck around and those I have met since.
April 19, 2017
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5 min read
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If you're the parent of a child with cystic fibrosis, you probably know the worry that comes along with sending your kid away to summer camp. To ensure that my own kids with CF were cared for at camp, I wrote the following letter outlining their special medical needs.
March 31, 2017
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5 min read
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I never imagined that I would see cystic fibrosis as something to be grateful for. But now, in my 23rd year of life, I am thankful that CF has allowed me to open up about my struggles through spoken word poetry and find freedom in shared humanity.
March 31, 2017
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2 min read
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Going on a camping trip is a great way to relax and unplug from the daily grind, but when you have cystic fibrosis, unplugging requires some planning and strategy.
March 19, 2017
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5 min read
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During a health crisis, we can focus on our pain so much that we don't take time to acknowledge the pain of others.
March 17, 2017
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5 min read