The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Over the years, I have received some tough questions from children with CF, but one has really stuck with me. And if I were asked it again today, I know exactly what I would say.
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Our latest “Living Today” video features Stacy Motenko, 28, who refuses to let CF limit her dreams. Hear Stacy's story.
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There comes a time when all cystic fibrosis patients must come out of the closet.
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I have found my existence as a cystic fibrosis adolescent to be very interesting. This is mostly because in addition to the acne and braces and intense hormonal imbalances, there was always my CF.
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I remember the first time that I understood that cystic fibrosis made me different.