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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Honoring My Partner’s Legacy

My partner, Jan, was a CF fighter for 50 years. She lived an amazing life and celebrated her lung transplant to the fullest. She passed away a few months ago and I'm honored to keep her fight against CF going strong.

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Danielle Doerfler
| 6 min read
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Coping With the Loss of My Brother to CF

Losing my brother when I was just a teenager left me feeling isolated in my grief. There was no internet or social media in the 1980s to connect with other people with CF. Therapy and time eventually allowed me to cope with his loss, open up to family and friends, and invite them to share in my memories.

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Melissa Shiffman
| 7 min read
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Remembering Claire Wineland

Although many of us were never able to meet Claire Wineland in person as fellow CF patients, her legacy and approach to the disease continue to have a major impact on the CF community.

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Katherine Russell-Sponaugle
| 5 min read
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My Two Siblings' Enduring Legacy

Cystic fibrosis took the lives of my sister and brother. I use every opportunity to share their stories and help keep their memories alive.

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April Zimmerman
| 5 min read
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My Mother’s Life Overshadowed CF

My mother's approach to her cystic fibrosis was matter-of-fact, allowing her personality to take center stage.

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Melissa Kandel
| 8 min read
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Looking for Answers When I Don’t Know the Questions

Shortly after my fiancée, Ashley, told me about her cystic fibrosis, we were engaged. Months later, she passed away, leaving me to figure out what I could have done differently and how to cope.

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Jesse DaCosta
| 5 min read