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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Hope and Anxiety as My Children Await Trikafta for Ages 6-11

Although I'm glad that my two children with cystic fibrosis will soon have the opportunity to try Trikafta, I am also a little worried about whether they will have side effects and how well they will do on the drug long-term.

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| 5 min read
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I Better Start Saving for 100 Days in Hawaii

When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn't be around to see it. Today, my fears have dwindled. 

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| 3 min read
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WATCH: New Developments in Drugs to Reduce Infection, March 2016

Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.

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| 1 min read
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WATCH: New Developments in Drugs to Restore Airway Surface Liquid, March 2016

Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.

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| 1 min read
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WATCH: New Developments in Drugs to Reduce Inflammation, Feb. 2016

Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.

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| 1 min read
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WATCH: New Developments in Restoring CFTR Function, Feb. 2016

Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis. 

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| 2 min read