The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
![Zanny flexing her bicep which has a PICC line in it](/sites/default/files/styles/image_card/public/2024-04/Zanny-Steffgen-Featured-Image.png?h=8abcec71&itok=Fr7k5PvA)
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
![A professional headshot of Zanny Steffgen](/sites/default/files/styles/author_thumbnail/public/2024-04/Zanny-Steffgen-Headshot.png?itok=oD3iLvkp)
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Although I'm glad that my two children with cystic fibrosis will soon have the opportunity to try Trikafta, I am also a little worried about whether they will have side effects and how well they will do on the drug long-term.
![Dara-Riva-Headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Dara-Riva-Headshot.jpg?itok=1xU1Op5b)
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When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn't be around to see it. Today, my fears have dwindled.
![Susie-Rider-Headshot](/sites/default/files/styles/author_thumbnail/public/2021-09/Susie-Rider-Headshot.jpg?itok=AVvCHdHU)
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Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.
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Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.
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Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.
![Christina-Roman](/sites/default/files/styles/author_thumbnail/public/2021-09/Christina-Roman.jpg?itok=PrqmWjP5)
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Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis.
![Christina-Roman](/sites/default/files/styles/author_thumbnail/public/2021-09/Christina-Roman.jpg?itok=PrqmWjP5)