Clinical Research...Why?

Check out a post by Brandon, an adult with CF, on clinical trials and why he found one to be rewarding even though the drug wasn't ultimately approved.

July 29, 2015 | 2 min read
Christina Roman
Brandon Erhart and fiance Meaghan_Square

I recently read a post, "Clinical Research...Why?" by Brandon, an adult with CF, on why he first chose to participate in clinical trials and why he continues to do so today.

Brandon Erhart and fiance Meaghan_Square
Brandon, 24, with his fiancé, Meaghan.

The post is great for many reasons, but one of the things I love most is that Brandon talks about why he found a trial to be rewarding even though the drug wasn't ultimately approved. He echoes what we've been hearing from many of you: that the experience allowed him to learn more about his CF and build a deeper relationship with his care team.

Right now, we are at a turning point in CF research, with a greater number of promising clinical trials than ever before for people of all ages and levels of health. But it will take thousands of people like Brandon who are willing to give their time to help make these future CF treatments possible.

More than two dozen clinical trials of potential new drugs are taking place in 2015 alone at care centers across the country. You can help. Sign up to receive clinical trial alerts .

Check out Brandon's post, "Clinical Research…Why?" to learn more about his experience participating in clinical trials.

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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As community engagement manager for the Cystic Fibrosis Foundation, Christina works to help embed the voice of the community into the work of the Foundation. Before joining the community partnerships team Christina worked on the clinical trials team for 3 years and at Colorado Children's Hospital for 2 years supporting the CF team. She holds a master's degree in public health from the University of Colorado. Originally from Estes Park, Colo., Christina now lives in Washington, D.C., with her husband.

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