Impact Grants
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65 Roses Art Club Hosted by Stephanie Carlstrom, an adult with CF, the 65 Roses Art Club provides classes for children and adults with CF to explore various therapeutic creative projects. Virtual classes will encourage stress management, socialization, and connection while developing new creative skills. To register, complete an interest form. |
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From BreatheStrong CF, this motivational, points-based program encourages healthy habits for those with cystic fibrosis, including exercise, connecting with others in the CF community, and self-care. |
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Bright Beginnings, Brilliant Futures Bright Beginnings, Brilliant Futures is an online space where primary caregivers of newly diagnosed infants can build community, empower their families with tools to live full lives, and feel hopeful about their children's futures. This two-part program includes a series of self-guided informational modules and an online community of support. Those interested can contact the Bright Beginnings team for more information. |
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Led by Marisa Ballaro and the Ballaro Dance company, CF Community Footprints is a virtual dance program with weekly sessions for people with CF and their families focused on movement, writing and reflection, and community connection; culminating in a collaborative dance piece. Those interested can fill out an interest form. |
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CF Senior Saturday Meet and Greets Led by Kristina Robinson, an adult with CF, this program provides a virtual meeting space for people with CF ages 40+ to connect, exchange experiences, and access age-specific resources; encouraging them to become leaders in their communities, promote positive aging, and help inform policies and programs that meet the needs of older adults with CF. |
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CF Wellbeing Collective Led by Aliyah Novelli, a licensed social worker and adult with CF, this monthly mindfulness program provides young adults with CF the support and strategies they need to address the unique challenges of life with their disease. Those who are interested in joining the Fall 2024 cohort can submit an interest form. |
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Hosted by Caleigh Haber, an adult with CF, the Fight2Breathe podcast provides a platform for sharing personal stories, professional insights, and the latest advancements related to CF. Listeners can look forward to hearing about topics such as CF research breakthroughs, mental health, relationships, navigating health care systems, and more. Note: This podcast will launch in Fall 2024. |
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Led by Neha Purohit, a CF Foundation volunteer with the Georgia Chapter and third-degree black belt, Fit for CF is a virtual taekwondo fitness program for children with CF ages 4-15. During the eight-week course, kids will practice age-appropriate exercises and build healthy lifestyle habits to support their physical, mental, and social development. |
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Practical Skills for Healthy Eating for Children With CF and Their Families Produced by the Integrative Health team at Children’s Hospital of Philadelphia, this virtual cooking series is tailored for families of people with CF. Interactive classes will provide practical strategies for nutritious cooking featuring recipes that meet the dietary needs of the CF community and appeal to the whole family regardless of budget or busy schedules. |
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Spit it Out (A CF Storytellers Training) Led by Katherine Russell, a specialist in storytelling and adult with CF, this virtual public speaking program uses trauma-informed training to help people with CF share their stories. Speakers will learn how to familiarize themselves with their own story, structure their story to connect with others, and deliver their story with power. |
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The Salty Pen: A CF Writing Group Led by Cynthia Baldwin, a published author and adult with CF, this virtual program is for all writers with CF who want to achieve their personal writing goals and have the opportunity to collaborate, find support, and solicit feedback on their writing. |
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Turning Points Coaching for Adults With CF Led by Roberta Gregoire, a parent of a young adult with CF, this group coaching program is designed to support adults with CF as they navigate life changes since starting modulator therapy. Primary goals include helping participants process identity shifts, articulate goals, build community, and take steps toward the life they’ve imagined. |
Community Support Grants
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Cystic Fibrosis Reproductive & Sexual Health Guide by CFReSHC Written by adults with CF and informed by the work and learnings of their Patient Task Force, this guide helps to facilitate conversations between patients and providers around the sexual and reproductive health needs of adults with CF. |
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This quarterly publication from the United States Adult Cystic Fibrosis Association is available in digital or print and provides news, information, and insights about CF. Articles are written by adults with CF and focus on interest areas identified by readers in the community, such as: parenting and CF, diversity in cystic fibrosis, employment and remote work with CF, self-care strategies, and more. |
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Founded by professional performer and adult with CF, Rebecca Shook, this group of comedic actors creates personalized skits with music and storytelling to provide emotional support for children with CF during hospital and clinic visits. Parents can request customized videos through the DistrActors website. |
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Exercise and Athletic Sponsorships To help manage the physical and emotional aspects of living with CF, this program from Coach Ed, Inc. supports and empowers children with CF to incorporate physical activity into their daily lives. Program participants are selected to receive financial sponsorships of up to $750 for participation in fitness-related activities, including guidance for identifying the appropriate opportunity. |
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Men’s Sexual & Reproductive Health From BreatheStrong CF, this program provides a virtual support forum for people assigned male at birth with cystic fibrosis to share their CF-related sexual and reproductive health experiences, define priorities for research and care, and create resources for both clinicians and people with CF. |
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Founded by professional vocalist and adult with CF, Ashley Ballou-Bonnema, this 10-week program from Breathe Bravely focuses on combating CF through the art of singing. Virtual lessons are taught by a cohort of professional voice instructors and focus on building self-awareness, self-confidence, and respiratory strength. |
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sINgSPIRE Virtual Choir – Breathe Bravely Individuals who have completed at least one session of the sINgSPIRE Private Lessons program are invited to participate in the sINgSPIRE Virtual Choir. Students participate in group rehearsals where they interact with each other, build community, and work through music that is commissioned and arranged specifically for them. |
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From Claire's Place Foundation, the Work Proudly Program provides adults with CF and caregivers with job training and equipment to advance their professional skillsets and acquire flexible, work-from-home employment. Referrals for the program must be submitted by a member of the patient’s care team through the Claire’s Place Foundation website. |
