BreatheStrong+  

From Miles for Cystic Fibrosis, this motivational, points-based program encourages healthy habits for those with cystic fibrosis, including exercise, connecting with others in the CF community, and self-care.

Bright Beginnings, Brilliant Futures  

Bright Beginnings, Brilliant Futures is an online space where primary caregivers of newly diagnosed infants can build community, empower their families with tools to live full lives, and feel hopeful about their children's futures. This two-part program includes a series of self-guided informational modules and an online community of support. Those interested can contact the Bright Beginnings team for more information. 

CF Community Footprints 

Led by Marisa Ballaro and the Ballaro Dance company, CF Community Footprints is a virtual dance program with weekly sessions for people with CF and their families focused on movement, writing and reflection, and community connection; culminating in a collaborative dance piece.

Note: Registration for this program will launch in Fall 2023 on the Ballaro Dance website.

CF Master Class

From The Bonnell Foundation, CF Master Class is a series of educational videos designed specifically for parents, guardians, and caregivers of children and young adults with CF — all created by parents and caregivers in the community. Topics include advocating for your loved one, raising multiple children with CF, diversity and CF, and more.

CF Senior Saturday Meet and Greets

Led by Kristina Robinson, an adult with CF, this program provides a virtual meeting space for people with CF ages 40+ to connect, exchange experiences, and access age-specific resources; encouraging them to become leaders in their communities, promote positive aging, and help inform policies and programs that meet the needs of older adults with CF.

Spit it Out (A CF Storytellers Training)  

Led by Katherine Russell, a specialist in storytelling and adult with CF, this virtual public speaking program uses trauma-informed training to help people with CF share their stories. Speakers will learn how to familiarize themselves with their own story, structure their story to connect with others, and deliver their story with power. Submit an interest form today.

STROLO University: Promoting Sexual and Reproductive Health of Men With CF 

From Miles for Cystic Fibrosis in collaboration with the Cystic Fibrosis Lifestyle Foundation, this is a virtual support forum for people assigned male at birth with cystic fibrosis to share their CF-related sexual and reproductive health experiences, define priorities for research and care, and create resources for both clinicians and people with CF. 

The Salty Pen: A CF Writing Group

Led by Cynthia Baldwin, a published author and adult with CF, this virtual program is for all writers with CF who want to achieve their personal writing goals and have the opportunity to collaborate, find support, and solicit feedback on their writing. To learn more and enroll, complete this intake form.

Turning Points Coaching for Adults with CF

Led by Roberta Gregoire, a parent of a young adult with CF, this group coaching program is designed to support adults with CF as they navigate life changes since starting modulator therapy. Primary goals include helping participants process identity shifts, articulate goals, build community, and take steps toward the life they’ve imagined.

Young Adult Group Program

Led by Aliyah Novelli, a licensed social worker and adult with CF, this monthly mindfulness program provides young adults with CF the support and strategies they need to address the unique challenges of life with their disease.

Note: This program will launch in Fall 2023.

65 Wellness Wishes 

From Meghan’s Light, this program provides sponsorships of up to $250 for children with CF in New England to participate in exercise and wellness activities, such as summer camps and recreational sports. 

Cystic Fibrosis Reproductive & Sexual Health Collaborative 

This program invites women with CF to partner with health care providers and researchers to shape the future of CF research on sexual and reproductive health issues. CFReSHC holds monthly virtual meetings for women with CF to share their experiences, help identify knowledge gaps, and formulate key research questions to inform patient-centered research projects. 

CF Roundtable 

This quarterly publication from the United States Adult Cystic Fibrosis Association is available in digital or print and provides news, information, and insights about CF. Articles are written by adults with CF and focus on interest areas identified by readers in the community, such as: parenting and CF, diversity in cystic fibrosis, employment and remote work with CF, self-care strategies, and more. 

The DistrActors 

Founded by professional performer and adult with CF, Rebecca Shook, this group of comedic actors creates personalized skits with music and storytelling to provide emotional support for children with CF during hospital and clinic visits. Parents can request customized videos through the DistrActors website. 

Exercise and Athletic Sponsorships

To help manage the physical and emotional aspects of living with CF, this program from Coach Ed, Inc. supports and empowers children with CF to incorporate physical activity into their daily lives. Program participants are selected to receive financial sponsorships of up to $750 for participation in fitness-related activities, including guidance for identifying the appropriate opportunity. 

Project CF Spouse 

This nonprofit organization is dedicated to educating and supporting spouses and partners of people with CF. Resources available include a virtual community forum, casual monthly “Spouse Calls,” a community blog, and a podcast.

Raising Cystic Fibrosis Engagement in the African American Community 

From the National Organization of African Americans with Cystic Fibrosis, this program aims to connect and engage people with CF and their families in the African American community through online workshops and a virtual connection forum.  

sINgSPIRE Private Lessons

Founded by professional vocalist and adult with CF, Ashley Ballou-Bonnema, this 10-week program from Breathe Bravely focuses on combating CF through the art of singing. Virtual lessons are taught by a cohort of professional voice instructors and focus on building self-awareness, self-confidence, and respiratory strength. 

sINgSPIRE Virtual Choir – Breathe Bravely

Individuals who have completed at least one session of the sINgSPIRE Private Lessons program are invited to participate in the sINgSPIRE Virtual Choir. Students participate in group rehearsals where they interact with each other, build community, and work through music that is commissioned and arranged specifically for them.  

Work Proudly Program

From Claire's Place Foundation, the Work Proudly Program provides adults with CF and caregivers with job training and equipment to advance their professional skillsets and acquire flexible, work-from-home employment. Referrals for the program must be submitted by a member of the patient’s care team through the Claire’s Place Foundation website.